Wednesday, August 31, 2011
The Numbers Game
Boo continues to make improvements. His blood work shows steady gains in red blood cell and platelet counts. The real key is to make sure urine output continues and increases in conjunction with steadily improving numbers indicating proper kidney functioning. Thus far this happening.
Tuesday, August 30, 2011
Hall Pass
We did it. We took Boo out of the hospital for the first time in 11 days. We met my dad, Penny, Daniel and Carmen at U Village. Seeing his brother and sister in a stimulating environment proved a little more than Boo could handle so we came back after 30 minutes. That's about what we anticipated.
Oh yeah, and he pooped today. Twice. The first one already came back negative for the E. coli bacteria. We should know in the morning about the second. Assuming it's negative we'll drop the "contact isolation" restriction within the hospital, allowing us access to the family centers and play areas.
Today was the day were waited for all last week. (Large exhale) Finally.
Boo Belly
Here are a few pictures of Boo taken about a month ago. He's since lost that little Buddha belly and leg definition. Don't ask me to explain the pictures. Just enjoy the fact it's Boo being Boo.
2 down, 1 to go
Just received official word from the Health Department:
-Daniel tested negative for E. coli. He never had it.
-Carmen submitted two test. The first was positive and the second negative which means it cleared her system between the tests. They now consider her completely free and clear of E. coli and non-contagious.
It's been a great day!
-Daniel tested negative for E. coli. He never had it.
-Carmen submitted two test. The first was positive and the second negative which means it cleared her system between the tests. They now consider her completely free and clear of E. coli and non-contagious.
It's been a great day!
Keep Rolling, Boo
-Dialysis went really well this morning. Having the new line is way easier and comfortable for him.
-He had a pee-pee diaper this morning which is great. He's increasing pee output everyday.
-He ditched all his monitoring devices: no wires, no IV
-All future blood samples can be taken from his dialysis line which means no more pokes!
-No dialysis tomorrow. Another welcomed day off.
-We now get hall-passes from the hospital. We may take a quick trip to U Village if he's up to it later.
-He's eating more and more. The twinkle in his eyes is slowly returning. He's talking more, interacting with us more and expressing a desire to color, read, paint, etc.
-No official word but I have a feeling we'll be out of here before the end of the week. He may continue dialysis but he can do it as an out-patient.
-He had a pee-pee diaper this morning which is great. He's increasing pee output everyday.
-He ditched all his monitoring devices: no wires, no IV
-All future blood samples can be taken from his dialysis line which means no more pokes!
-No dialysis tomorrow. Another welcomed day off.
-We now get hall-passes from the hospital. We may take a quick trip to U Village if he's up to it later.
-He's eating more and more. The twinkle in his eyes is slowly returning. He's talking more, interacting with us more and expressing a desire to color, read, paint, etc.
-No official word but I have a feeling we'll be out of here before the end of the week. He may continue dialysis but he can do it as an out-patient.
Rays of Sun
Boo's dinner last night was a four course meal consisting of various desserts, each one richer than the previous. He then watched cartoons until he couldn't keep his eyes open. I certainly hope he forgets the content because some of the late night cartoons are anything but age appropriate for Boo. He's even to sleep through all the nightly vitals checks.
We're off to dialysis.
We're off to dialysis.
Monday, August 29, 2011
Good Day
He's back. And a little stoned from all the medicine.
His procedure went well. They removed the line sticking out of his neck like an errant dart and replaced it with what appear to be jumper cables sticking out of his chest. His platelets are still low so we need to keep an eye on bleeding but all-in-all he's good to go.
We also received some encouraging news from our new doctor. His platelet count, which had been in the 20's, was in the 50's this morning. That's great news because it's generally the first indicator of improvement. Yes!!!
His procedure went well. They removed the line sticking out of his neck like an errant dart and replaced it with what appear to be jumper cables sticking out of his chest. His platelets are still low so we need to keep an eye on bleeding but all-in-all he's good to go.
We also received some encouraging news from our new doctor. His platelet count, which had been in the 20's, was in the 50's this morning. That's great news because it's generally the first indicator of improvement. Yes!!!
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