Tuesday, August 23, 2011

Big Drop

The first of today's blood results were not good.  Boo's platelets dropped from 195 to 59.  That's a significant drop and a pretty good indicator he's developing HUS.  They are really watching his fluid intake and output as his kidneys are struggling to keep up with fluid maintenance.  His doctors have called in the Renal (kidney specialists) team to assist.  He can't eat or drink anything right now and they aren't adding any fluids via IV until the Renal team advises.

Boo is resigned to the fact his vitals are checked on a regular basis by a number of different doctors and nurses.  But getting blood drawn is a whole other issue.  The second he realizes it's not a vitals check he breaks out in a dripping sweat.  It generally takes one or two support people to keep him still because he's crying and fighting it.  To make it worse once the blood tech left this morning he kept saying he wanted to go home.  I told him we needed to speak with his doctor first.  A little while later the nurse came in and he asked me to ask her if he could go home.  That's tough...

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