Thursday, August 25, 2011

Dialysis Day 2

The ups and downs of HUS:
-Boo ate a little carton of strawberries last night.  And drink a few ounces.  These little signs of life are welcomed.
-Boo slept from 10pm until 8am this morning at which point we actually had to wake him up for dialysis.
-Dialysis went well.  His line is tender and awkward but he tolerates it fairly well.
-We just got his lab results and all the numbers remained about the same or went the wrong way.  This was expected.  Tomorrow he'll receive his first blood transfusion.  This occurs during dialysis so it doesn't introduce an additional procedure.
-He had a fairly healthy appetite this morning.  He even voiced excitement about eating eggs and toast.
-He's regaining a little color, especially in his lips.  He's a little more swollen today but his blood pressure is normal so it's not a major concern.
-The plan is to perform daily dialysis until his kidneys start functioning on their own.
-Assuming Boo and his kidneys don't make a quick improvement he's scheduled to switch to the "permanent" dialysis line Monday at 12:30.

Takeaway points and big picture thoughts:
The HUS symptoms are progressing as predicted.  Boo slept great last night and ate a solid breakfast this morning.  Both factors should give him a little more energy.  Thus far all the supposed "worst case scenarios" happened and we're effectively managing them.  Right now it feels as though we've switched from crisis mode and moved to monitoring and treating.  Mollie and I are setting sleep schedules so we don't get too run down.  It's still one day at a time but the burden constant crisis has lifted.

There are so many people to thank but we want to shine a special spot light on our parents.
-We can't thank my dad and Penny enough for taking Daniel and Carmen.  Penny took a week of from work to help.
-My mom has also been a great support and a good sounding board.  Boo won't run short of books or movies thanks to Granny Ina.
-Not enough good things can be said about Bubba (my dad) and Pappa (Mollie's dad).  They've done everything from taking early and/or late shifts, helping manage yesterday's crisis, managing all the pets at home and providing constant moral support.  They've been there at every turn.

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