-He received a blood transfusion today during dialysis
-His numbers are still trending the wrong direction (expected)
-We're giving him Tums (sodium carbonate, liquid form) to help ease stomach discomfort and bind to phosphorus. Phosphorus is filtered by the kidneys. Phosphorus and calcium need to stay in a certain ratio and this will preserve the ratio.
-He's getting a drug called EPO (that's what I'm calling, there's an actually medical term with 11 syllables). He'll get this during dialysis, so like the blood transfusions so it doesn't add a noticeable procedure.
Boo received a goose hand-puppet this morning. Mollie was laying (lying? Stupid english) in bed with Boo as the doctor was talking with us. Boo was getting tired and rolled over to cuddle with Mollie. A couple times while we were talking he'd raise his goose arm and open/close the mouth, in essence telling us to be quiet. Mollie and I started laughing along with the doctor. It's one of those you-had-to-be-there moments but the poor doctor couldn't stop laughing. Here we are trying to have a very serious conversation about Boo's condition, possible side effects and the new treatments and the doctor is trying not to laugh which is making her laugh even harder. Every once in a while we get a good shot of the old, healthy Boo.
That is adorable. I spent a lot of time at Children's as a kid and I have vivid memories of the puppet shows my dad would put on for me. I still have the gorilla and bunny puppets that were in all the shows. I'm sure goofy Nate has already performed a few. We are thinking about Boo lots and sending our love. Parks and Wyatt are ready to play with Boo as soon as he is better! hopefully real soon. Xoxo Krista and Ryan
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