Tuesday, August 23, 2011

Things Are Looking Up

We met with the Nephrologists this afternoon.  They were very supportive and informative.  Some takeaway points:
-Boo is in a good position right now.  He's properly hydrated which is really critical.
-Boo just had blood drawn and we'll get the results later tonight.  We're looking for platelet levels to start rising.  That typically indicates turning the corner.  There is no set timeline at this point.  Recovery might occur in a few days or a few weeks.
-We're closely following his electrolytes.  Among other things the kidneys process sodium and potassium.  A build up either can have negative side effects.
-All symptoms and complications can be handled.  HUS isn't treated as much as it's supported.  All treatment methods simply allow the body to heal itself, they don't actually treat HUS.
-Boo's off the IV and drinking on his own.  He should be drinking 750 ml (a bottle of wine) every 24 hours.  What he doesn't do orally will be supplemented by IV.
-Boo's showing signs of spunk.  The concern is he in a healthy window: recovering from the diarrhea but not yet suffer some of the HUS side effects.
-We don't know if/when Boo might require blood transfusions or dialysis.

Here's a little (admittedly, boring) video of Boo showing signs of life:

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