Tuesday, August 23, 2011

HUS

I was in the middle of writing a post trying to focus on some of the positives when the doctor came in.  Boo now has HUS.  So much for positives.
His Creatinine level jumped from .4 to 2.2.  Normal range is less than 1.0.
His blood count dropped from 34 to 32.  This is a very small drop.  At 20 they become concerned and start discussing blood transfusions.
His Platelet count dropped from 195 to 56.  At around 15-20 they discuss blood transfusions.  Although in some cases transfusions can make matters worse.
His sodium and potassium levels are okay which means his kidneys are able to process some toxins.

We will meet with the Renal team later this morning to go over more details related to dialysis (if needed), nutrition (he hasn't eaten since last week) and fluid management.  There are so many variables and so many results to monitor.  It's really hard to wrap my head around everything and it's an emotional roller coaster.

They are hesitant to give a timeline but it sounds like a few weeks.

There are a few positives:
-We have complete confidence in our team of doctors and nurses.  Children's Hospital has been great.
-Boo has been carefully monitored from a very early stage.  We are in a good position in terms of fluid management as opposed to some people who don't get to the hospital as soon as we did.
-All of the issues are treatable!  I have to keep reminding myself of this one.
-We have a ton of support from family and friends.  Thank you.
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1 comment:

  1. I'm keeping Boo, you and Mollie in my thoughts. He's lucky to have such great parents. Best wishes to all of you getting through this stressful time!

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